Dr. B. Gindis
Practically all children from
foreign institutions (even adopted as infants) come into their adoptive
families with a developmental delay of some sort. This is a well known
fact and a commonly expected condition that often causes prospective
parents ask questions about developmental delays as well as research
them on the Internet.
Unfortunately the information from
many websites on "developmental delay" and "global developmental
delay" is rather vague and amounts mostly to saying that "children
with developmental delays reach the same developmental milestones and
acquire the same skills as every child, but just a bit slower."
The situation is more complicated than that when we talk about post-institutionalized
adopted children.
First, we have to differentiate
between two terms sometimes (wrongly) used interchangeably: developmental
disorder and developmental delay.
The first term, developmental
disorder (or developmental disability), is used in the domain of
psychiatry and psychology and deals with specific neurologically-based
weaknesses that are typically diagnosed in infancy, childhood, or adolescence.
The examples would be:
- Pervasive Developmental Disorders
(Autism, Asperger's, PDD-NOS)
- Mental Retardation
- Learning Disorder
- Motor skills Disorder
- Communication (Speech and language)
Disorder
- Reactive Attachment Disorder
- Attention Deficit/Hyperactivity
Disorder
- Eating Disorder
- Others (see DSM-lV-TR, American
Psychiatric Association, Washington, DC, 2000, pages 39 to 134)
The second term, developmental
delay, is used in the domain of education, culture, and everyday
life where the notion is based mostly on observations of a tardy development
of a child in comparison with other children of the same chronological
age, or in comparison with the general socio-cultural expectations for
a certain age group. This kind of developmental delay is not necessarily
due to organic impairment or genetic abnormality, but rather to social/cultural
factors, such as educational neglect, cultural deprivation, emotional
trauma and abuse, etc.
It must be clearly stated that both
developmental disorders and developmental delays can be found in post-institutionalized
children adopted internationally, and in many cases developmental delays
are produced by a combination of neurological weaknesses, certain
medical conditions (e.g., cleft palate), and profound educational neglect,
social/cultural deprivation and socially induced emotional trauma.
In many medical histories of internationally
adopted children (at least from countries of Eastern Europe) one may
find the following notations:
- Delay in psycho-motor development
- Delay in language and psychological
development
- Temporal delay in psychological
development
- Delay in psychological development
due to social conditions
These delays are not medical
diagnoses per se, but, rather, are the terms used to indicate observed
deficiencies in the child's adaptive skills, school readiness, emotional
maturity, behavior self-regulation, etc. in comparison with their peers.
The degree of delays may be very different, ranging from a relatively
mild gap between the norms and the actual developmental status of the
child to a significant developmental disability. Thus, the degree of
needed rehabilitation is also different: from a minimal remedial support
service to a full time special education program. The recovery from
any developmental delay in international adoptees is a highly individualized
process with different outcomes that depend on the underlying causes,
the child's age, timely applied remediation, and the appropriateness
and intensity of selected remedial strategies.
The public at large, parents, and
health and educational professionals typically are well aware of the
necessity of effective rehabilitation for children with developmental
disorders. At the same time, there is still a lot of misunderstanding
or bluntly wrong assumptions regarding developmental delays of the non-organic
nature. In internationally adopted children such delays, if not addressed,
may lead to very significant consequences, no less disruptive and debilitating
than organic-based disorders. So let us have a closer look at this phenomenon.