A
"Laundry List of Symptoms" or
Impaired Neurology?
Parenting of internationally adopted post-institutionalized
children is a great challenge. This is a special group of children who
are in care of a special kind of parents. Many of these parents are
well educated and knowledgeable individuals. At the same time, because
all of them "navigate uncharted waters" so to speak, they
are anxious to be proactive and effective and often fall in the trap
of what I call "a laundry list of symptoms". The most notable
example is the list of symptoms related to Attachment Disorder. It is
so easy to click the button and serf the Internet to encounter a catalog
of symptoms, usually long and vague, which seems to be applicable to
your child. And almost instantly to experience an insight (an "aga!"
moment): "That is what my child has". Often after some further
search and discussion with adoptive parents or, sometimes, professionals
the outcome will be a firm belief that "my child has attachment
issues (or ADHD, or bi-polar disorder, etc)". Subscribing too quickly
to an "obvious" symptom may result in months (and thousands
of dollars) spent on therapies that would not help because the wrong
problems are being addressed.
It's important to understand
that a significant number of internationally adopted post-institutionalized
children are neurologically compromised as a combined result of pre-nattily
weakened or damaged Central Nervous System and years of deprivation,
neglect, and institutionalization. They may consistently demonstrate
patterns of behavior resembling many known emotional and behavioral
disorders and still do not have these disorders: they suffer from the
impaired neurological functioning.
Let me cite at this point Harriet McCartney, one of the
most knowledgeable and insightful adoptive parents I ever met, who speaks
from her own experience:
.I've parented one of these
difficult, scrambled kids for almost 11 years, so I've had plenty of
time to watch the progression and have the advantage of hindsight. He
was adopted at the age of 5 years, 2 months and possessed no working
memory and no self-generated language, although he could repeat words.
Our early relationship was fraught with frustration on both our parts
and I found myself wondering about attachment issues. Along the line,
early-on, I filled out part of an intake application for an attachment
clinic here in the area. I stopped mid-way because it was clear that
what I was seeing with my son didn't jibe with what the attachment experts
were looking for.
In my quest for an answer to why
my son acted the way he did, I discovered the world of sensory integration
disorder, language processing and auditory processing disorders, psychological
therapies, physiological abnormalities, post-traumatic stress syndrome,
anxiety disorder, learning disabilities and dyslexia, ADHD (or what
looked like it) and alcohol-related neurological disabilities among
many other, now thoroughly integrated issues. What overrode all of these
individual symptoms was the neurological component which turned out
to be a fundamental element in every single one of the symptoms. What
looked like an inability to attach was actually a neurological inability
to integrate all the incoming data of finally having a family to relate
to on an emotionally meaningful basis. What looked like oppositional
behavior and/or indifference was a fundamental and very severe language
processing problem - both receptive and expressive. What looked like
acting-out for its own sake was actually a response to triggers from
a severe case of post-traumatic stress. And so it went. For the first
two years, my son couldn't remember if I was the "Mom" or
the "Pop", so he compensated by sticking the two names together
and called both of us "MomPop". He had no idea of the concept
of "Mother", so what looked like rejection to me was actually
his inability to integrate the concept with whatever memory he already
had (which wasn't much) of a deceased mother/combination orphanage worker
and the single-minded madwoman he was currently living with)...
An overlooked weakened neurology of a child is only one
factor leading to a frustrating "search-for-a-diagnose" problem.
Three other contributors commonly ignored or misinterpreted as symptoms
of emotional and behavioral disorders are:
- The influence of an abrupt language loss by a child
- Cultural components of behavior that define the perceptions
- Learned "orphanage survival skills" and reaction
to family life adjustment
How many times in my clinical practice, a child would
be brought to our Center with a list of symptoms pointing to CAPD, ADHD,
RAD, etc. (you may include all the letters of English alphabet here!)
just to end up with a specific neurologically based diagnosis that explains
all this "seven-soup" of different manifestations. I clearly
remember an 8-year-old girl adopted as a toddler from Rumania who was
diagnosed with five (!) different disorders, including attachment, post-traumatic
stress disorder, and hyperactivity, who, in fact, had a high-functioning
autism that explained all her issues. The presence of a neurologically-based
disorder (e.g. alcohol-related neuro-developmental disorder, also known
as FAS or autism-spectrum disorder, etc.) may include secondary emotional
disturbances, but at the core of it is a damaged Central Nervous System.
In search of what is wrong and how to address the issue(s),
it's very important to have a plan and start from the essential things
first: do a thorough neuropsychological assessment (if needed, after
a neurological evaluation); familiarize yourself with possible affects
of three contributing factors above and carefully rule out the causes
of other seemingly "obvious" issues.
Boris Gindis, Ph.D.